The Rare Disease Society of South Africa is a registered Non-profit organization initiated by parents with children suffering from LSD (lysosomal storage disorders) to advocate for patients’ rights and create awareness about various life threatening rare diseases (RD).
RD patients form a minority of our society and receive little or no help or attention. Our acknowledgement and investment can make significant changes to RD patients’ quality of life. With timely and accurate diagnosis and intervention, people with rare diseases can contribute significantly and positively towards our society.
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