Pedalling4Pompe | Links | Charity

International Pompe Association
Link to a video showing Juans progress on treatment. http://www.youtube.com/watch?v=T0HS569KRx0

The AGSD-UK provides support and help for individuals and families affected by Glycogen Storage Disease (GSD).
GSDNet is an unmoderated discussion list for all types of glycogen storage disease (GSD). The list is intended to be a resource and support network for individuals and families affected by one of the 11 types of GSD. Participation by medical and scientifi

Gaucher Society of South Africa
Click here to enter the 94.7 cycle challenge

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